The NDI Foundation was formed to support education, research, treatment and cure for Nephrogenic Diabetes Insipidus. Our goal is to create a communication channel to serve the entire NDI community: patients and their families, researchers, physicians and other health care providers.
In recent years much progress has been made in determining the causes of both the acquired and familial forms of Nephrogenic Diabetes Insipidus and in developing treatment options. We feel that by providing communication resources to the researchers they can increase the pace of their discoveries.
Because of the potentially damaging effects of dehydration it is vitally important that NDI be diagnosed early. We provide NDI information pamphlets to health care providers to raise awareness of the symptoms, current diagnosis tools and treatment schemes in order to reduce the possibility of complications arising from delayed recognition and management of the disorder. We have also developed Medical Alert Cards published in 10 different languages to be carried by NDI patients. These provide clear, concise instructions for the critical emergency treatment that must be administered in case of accident.
We have hosted several NDI Researchers’ conference which bring together the nephrologists, geneticists and clinicians who are actively working on this disorder. This conferences have solidified a joint effort among the research community and have delineated how the Nephrogenic Diabetes InsipidusFoundation can best support their work. Conferences are held every two years to review the progress of NDI research and to assess the effectiveness of the foundation’s efforts to assist the NDI community.
